PLEAAASEE HELP!
My 6 year old son starts school monday & I still can not get him to brush his teeth. He will use the toothbrush with just water....but no toothpaste. He sees the tube & bolts. Anyone else deal with this? Suggestions?
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Hyperbaric Thoughts
I'm searching for some opinions about Hyperbaric Oxygen Therapy! I've heard some good things about it, but I also heard some parents tell me that it hasn't really done anything for their child. But I guess that's the same with anyting and our children. But I really am considering it for my son, so I wanted to get some perspectives on it. Please respond! Even if you know others who have had the therapy for their child. Thank you.
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My hand is the air can anybody see me?
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At what point do we hope for a miracle, at what point do we STOP juggling our day with different doctors, medications, therapy and special schools and different daycare centers before we go totally crazy. Do we think that our children really benefiting from being rushed around from one place to another because both parents are working and doing all they can to keep everybody moving in the right direction?
After doing all that, we expect our child to be different when we get home from work. I’m not saying this to piss anybody off, because I have done it myself.
I hope you read this, really read this because I have my hand up in the air to bring a different tool to the table, as a father of four girls; I get no response from this form.
Will some out there allow me to put my hand down and listen to what I have to say or are you so entrenched in doing the same thing from day to day that it’s becoming the normal way of life.
“Body Energy Balancing is real; ask a question about how it can help your child”. Shifting this energy around the child will only improve the condition no matter what the circumstances. This is a big statement and I hope you help me back it up. Because I need you to allow me to take a look at your child's energy system and I don't even need to be around the child. I do this re-motley and I will tell you more if you are interested in changing your child's future, because I am.
This is a non-evasive why to put your child's energy system back together and he or she will start making changes at the emotional and physical levels. Our body has the ability to heal itself and each child will heal differently because each child is unique. This process takes the parents to be involved in working with me by reporting back what is different about their child as we move through the healing. I will document every step and discuss what energies are out of balance before we do anything the energy system.
I will put my hand down, I feel I have said enough and I hope to hear from some of you because I care, I care enough to keep taking about this until someone will say "yes, Mr. Morse you a have a question" .
My question is "do we analysis the human energy system to help our children improve their condition"? and the answer is.....................
I hope 2010, will be the year for Autism to be wiped off the map for generations to come, I’m willing to stick my neck out there and I hope you will join me.
Brian
310-818-1270
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New to me!??!!
My son has just been diagnosed with autism and i am really confused. He turned 3 in october... I have known for about a year that something is wrong with him but i never could of imagined autism!! Still even with the diagnoses i am researching it on my own and it doesn't seem to fit. Some thing do but for the major things.. he is very lovable, has decent eye contact and is extremely friendly! I took him to the school because his speech was delayed and he doesn't seem to understand alot of what i am telling him! He has no boundries or no idea of what is apprpiate or not! He will talk, kiss, hug anyone he meets and is almost scary with how friendly he is... he has a small vocabulary but babbles alot! Not just normal babbling but he really seems to know what he is saying! He will repeat the same babble if you ask him "What?" he is a very picky eater and will go from eating something on a daily basis to not eating it ever again! He was completely potty trained at 2 1/2 and never has accidents! He is very compationate and protective of other people! He has a little sister that is 9 months old and he loves to play with her! This doesn't seem like autism to me?? I am very confused and don't really understand autism... some one please help me!!
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The True Value of Friendship
The True Value of Friendship
I just read probably the saddest story I have ever read related to Autism. On a very lonely night, in a very fancy hotel room mother Gigi Jordan basically euthanized her child Jude and attempted to do so with herself with prescription medications. Her child was eight, and autistic.
Link to the story if you wish to read it. www.nydailynews.com/news/ny_crime/2010/02/05/2010-02-05_8yearold_boy_slain_in_failed_murdersuicide_at_manhattans_tony_peninsula_hotel.html
I read that she had a lot of money, and many people may resent her for that because we all know how more funds would help us regular folk with our children. But this means nothing to me.
But what does mean something to me is the depth of her pain. That is was so deep and so desperate that this was the choice she chose to make, that it seemed to her to be the only way, the right way. How grateful all of us should feel, for not getting stuck in feeling that.
But we the parents of children with Autism are familiar with her pain, we know how sad it is to love your child but not be able to hug them, or give them kisses. How we talk to them and tell them we love them, but they say nothing back. How we have toys and try to play games with them, but they can’t play with us. That we are prepared to teach them about life, what a rainbow is, why the wind blows, but they never ask about these things. How we look forward to building a snowman and making snow angels, but they wind up screaming. How we want to bake cookies or cakes but they can’t hold a spoon and want nothing to do with the activity. How we want to have birthday parties, vacations, participate in children’s activities, but we discover our child is scared, hiding or screaming. We know the pain of not being able to participate in the life of a typical parent. We know the fear that could surround us if we let it. We know. Typical parents may have a difficult time fathoming this level of disappointment and fear. For we have to fear things such as, will my child accidently stab me? We have to fear will they set the house on fire? Will they escape in the night and I won’t be able to find them? Because these things can more easily happen with our kids.
And though I feel for her, and her desperation, I am angry. Not just at her for not taking the time to fully “see herself” but at her family and her friends. These people did not see what her pain was hiding from herself. What kind of self-absorbed people did she associate with? Did she not have a single person say to her “hey your being kind of crazy, what’s going on?” Was there no one, who questioned her choices or her attitude? Because you do not wake up one day and decide to do something like this. This comes after years of it eating at you. And everyone one of us likely knows the disappointment in family and friends that do not support or understand your situation, every one of us has lost friends because of the new change in lifestyle of having a child with special needs. But what we really learned is who our friends were to begin with. Those are the ones we still have; they support and love us and our troubled child. They bring us food, do our hair, babysit our pets so we can go out, they send us cards or give us silly gifts to cheer us up. They are the ones that come over and send you out for an hour so you can breathe; their love is what keeps us from sinking too low for too long.
We all know that having more funds would make the road less bumpy and can provide more opportunity. It can provide for therapists, doctors, treatments, the ability to take care of yourself, provide a healthier diet, being able to do more things because you can bring a caregiver or behaviorist with you. But money will not bring you understanding, compassion or true friendship. It will not bring you an understanding of self either.
Anyone of us with a child with special needs can as easily fall into this trap that she did. We have felt that desperation, but we don’t get stuck there. We are familiar with the ugliness of this desperation and isolation. Though I may have never personally wished my son dead, I have been frustrated enough to want to put him in an institution. But once the frustration passed moments later, I no longer felt that way. But I wasn’t stuck there. For getting stuck there can lead to suicide and killing others. For if people weren’t stuck on the idea, well than it wouldn’t have happened. And getting stuck on something is something we should all understand, because our kids get stuck on things all the time. And we work diligently to unstick them, so they can move on and not are there in the throws of being frustrated.
I am sad for their family today, they have lost so much because no one would listen, including themselves. It is too high a price to have to pay. That is truly one of the saddest things in the world, because it isn’t what happens to us that that matters, it’s what we do after they happen. We can stew on all we have lost with Autism or any illness our disease our children may have. We can focus on those things and one day we may feel so desperate as to destroy our life and the life of the one thing we hold most precious. This is why it’s very important to make the choice to surround yourself with positive people and those that truly love you. This is why it is most important to believe and take care of yourself. There is a saying that the lord only gives you what you can handle, and it is this concept that matters. Not whether you believe in one god over another or any god for that matter. But the idea that you are only given what you can handle, and sometimes we are given challenges in life. And because we are, we are blessed, because this means we are moving forward if we choose to take it. But that only works if you believe it.
This is why I won’t give in to it or stay stuck in any dark place. I have felt the pain, but I walk it off.
I steal hugs and kisses whenever possible, maybe it’s not as much as I should receive, but I have two very very affectionate dogs that more than make up for it. I have learned how resourceful I am, how strong I am, how much I can tolerate, how much I can juggle, how little things do not bother me. I am more organized and prepared than ever in my life. I never have clutter around. My child helps me keep my house clean and neat because that is how it has to be to function. I don’t have to worry about spending money I don’t have on overly elaborate parties or for other kid’s parties since my child does not have that many friends. (yet) And though I love making snowman and snow angels, snow is really cold, and really I am just fine with only being out in it for 20 minutes. All of this, and all that I have experienced with this allows me to not care about things that other people may rely on to make themselves feel whole and valuable. For I have a child with Autism, I look for more answers, I think outside the box and I never give up. Not because I am a saint, or superwoman, it’s just in the job description. If only Gigi could have told herself that, or had someone tell it to her. I am grateful for the very solid friendships that I am so blessed to have, which I know I had to work at keeping also. If you’re not a good friend, well you’re not going to have any good friends. Being a millionaire does not guaranty this either. This starts with the most important friendship we have, the one with ourselves.
C. Dagnelli Author of Little Squares with Colors: A Different way to look at Autism
www.crustyproductions.books.officelive.com
www.christinadagnelli.blogspot.com
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Wetting the Bed
I have just had great success in working with a child's energy system that has been wetting his bed for several years and the mother had to run to the laundry mat everyday without fail regardless of the medications that she tried to correct the problem. My service is very in expensive and I understand the this sounds to good to be true, only you can find out for yourself. This young boy also has issues with slamming his head, feet and hands.
Energy balancing can alter a child's brain activity and I'm a medical intuitive healer, I look at the entire energy system around the body and also the energies in the body and by gently shifting the energy can improve their condition at many levels.
If you are interested in talking with the mother she is available to share her experience with you and the many other things that have changed with her little boy. If your ready for change at any level read my website and call me if you would like any additional information on how the energy around our bodies can affect our health and our mind.
Depression is also has a lot to do with the energy system around the body, I hope that you will take the time to call and ask any questions you might have before you prejudge. This is real and I'm a father of four girls and I understand how difficult parenting can be even under the best of conditions.
I will give the mother's email or phone number upon request.
I look forward to talking to you
310-818-1270
www.Healing-Vibration.com
Brian
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Macie needs your help and support...Please
April 19, 2010,
Dear Friends and Family,
My daughter, Macie was diagnosed with autism at the age of three. At that time, our lives and hers seemed very uncertain. She had minimal language, no eye contact, no social interest in the outside world and spent her days in fits of pain and discomfort from various gastrointestinal issues, food allergies, rashes and heavy metal poisoning. We were told that Macie would never be “normal” and that she would never have friends. Macie turned 9 earlier this month and as you can see from her picture, she is quite a different child, one who is both healthy and happy with dozens of friends!
Her recovery is due to many things...supplementation, chelation, hyperbaric oxygen chambers, B-12 injections, IV therapies, OT, special diets, detoxification, enzymes and a whole lot of love, support and belief. You see, we always knew that Macie was locked somewhere inside of herself, we just needed to reach her and bring her back to us, back into our world. Eventually, she came back. Macie has often described that time in her life to us as, “being lost”. It breaks my heart to know that she felt that way and it makes me wonder if other autistic children sense or feel “lost” too? Macie worked very hard to come back to us. She rarely complained or cried, but simply followed along and did whatever we asked of her even when some of the things were difficult for a young child, like blood draws and IV’s. It’s hard to believe all the things we went through as a family, but at the end of the day, it made us much stronger and much more appreciative of what we have. Personally, Macie is my hero and always will be. She taught me about faith, perseverance and acceptance. We never gave up and she never stopped trying. She is a strong, determined little girl, who has endured more than most her age, and we are so proud of everything she has accomplished.
Macie’s life and future are no longer uncertain. We now know that she will be able to achieve whatever she sets her mind to. She is smart and caring with a wonderful sense of humor. We know that she will have all of the opportunities that normal kids have. In fact, due to her hard work, she has created a once in a lifetime opportunity for herself that many kids won’t have.
For the past 6 months, Macie has taken acting lessons, something that would have been unheard of just a couple of years ago. It’s been a dream of hers, a passion, to entertain others and it turns out, she’s really good at it. So good, in fact, that she has just been selected out of thousands of kids, by an official IPAC talent scout, to be showcased at the International Performing Arts Conference (IPAC) in Hollywood, CA, this June. She is one of 300 kids from across the United States that has an opportunity to see if she can make her dream of acting professionally into a reality. Unfortunately, due to the many prior years of treatments, therapies and interventions, our medical bills for Macie have accumulated into the many hundreds of thousands of dollars. You see, autism is considered “untreatable” and as such, is not covered by many insurance companies, if at all. So, we are writing to you to ask for your help.
Macie’s travel, hotel, meals, training, photos, showcases, etc., for 5 days and 4 nights, total $6,500 (including a parent to accompany her). Macie has started her “Hollywood Fund” by donating her savings of $206.00, so we still have a ways to go and a very short time to raise the funds, as we must have final payment in by May 5th. We have told Macie that it is a lot of money to raise in a very short time, but she is unfazed by the task at hand and grins ear to ear with each dollar she receives. She is working hard everyday, doing chores and asking neighbors what she can do for them to raise money for her trip. We are proud of her efforts and determination to reach her goal.
This is an opportunity to help Macie reach her goal and fulfill her dream by taking part in a once in a lifetime experience. We would greatly appreciate any size donation that you can afford to give. If we are unable to meet our goal, we will be unable to attend the event, so every little bit helps. Sponsors donating $100.00 or more will be listed in the Official IPAC Directory, which is given to all participants and their families, agents, managers, casting directors and industry executives attending the event. This may be tax deductible as well.
(Check with your CPA).
Macie is a shining example of what autistic kids are capable of. And she has proven, like so many others, that autism is treatable and that recovery is possible. April is Autism Awareness Month. Autism affects 1 in 110 and 1 in 70 boys. Those are staggering numbers and we need to all be aware that this is an epidemic that needs our support and attention. In helping to support Macie, you are truly helping to show others that there is hope for these children. With the proper interventions, nutritional support and therapies, these kids can go on to realize their dreams and potential. From the bottom of our hearts, we thank you for supporting Macie and making all of our dreams and hopes for her come true.
Sincerely yours,
kristen wiseman and macie farrell
925-325-4159
If you would like to donate, please send sponsorship check or money order payments made payable to:
International Performing Arts Academy (IPAA) or myself, Kristen Wiseman, whichever you prefer.
Please include in the memo section of your check FBO (for the benefit of) and include the name Farrell, so that she may receive financial credit from her sponsors/donors.
Please mail your donations (before May 5th) to: Krissie Wiseman 478 Florence Drive, Lafayette, CA 94549. We will then send in all monies along with the sponsor forms to IPAA, and keep track of donations so that Macie may send you a thank you for your support and generosity.
ANY SIZE DONATION WILL HELP. We truly appreciate even the smallest of donations.
Remember, sponsors donating $100.00 or more will receive his/her name and/or business name in the IPAC Program Directory given out to hundreds of entertainment industry professionals from all over the US, Europe and Japan who will be in attendance. Individuals and business owners will have their names listed following each of the participant’s name. But any size donation will greatly help.
Again, Macie and our entire family, thank you for your support and generosity.
Sincerely,
Krissie Wiseman and Macie Farrell
Millennium Biltmore Hotel
Los Angeles, California
Thursday, June 24, 2010 – Sunday, June 27, 2010
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Interview Needed
Hi, my name is Marianne Ortiz and I'm a young journalist looking for an individual that has autism. I am doing a piece on autism at school and I would like to see autism from a person that has it. I would prefer a teenager or a young adult, but what ever I can get will be grateful. I would like an over the phone interview or a webcam interview, but it all depends on the person. I am just trying to teach my classmates on this condition and what it is all about. Please someone answer me because this piece is very important to me and my grade. Just email me if you would like to know more.
Thank You, Marianne Ortiz
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Interview and Giveaway with Ellen Notbohm, autism mom and author of "1001 Great Ideas for Teaching and Raising Chldren with Autism or Aspeger's"
During the first week of school last year, Nick’s Kindergarten teacher walked up to me, and almost under her breath like we were about to share a secret she said, “Do you know of any good books on how to teach a child with Autism?”
And sheepishly I said, “No.” Quickly followed by, “Not off the top of my head, but let me look into it.”
I was disappointed that I didn’t have a go-to book to recommend. I should have immediately known what to suggest to her – something that would be succinct, easy to understand, quick to read, effortless to implement and even more important – well organized so that she could go back week after week and year after year to look up what she needed.
Well, it took me all school year, but I finally found my go-to book: 1001 Great Ideas for Teaching & Raising Children with Autism or Aspergers by Ellen Notbohm and Veronica Zysk – Not to mention a foreword by Temple Grandin, PhD who says the book is “Genuine, commonsense advice that all parents and educators can quickly and easily use!”
And who argues with Temple Grandin? Surely not me.
I asked Ellen Notbohm, who has also authored 10 Things Every Child with Autism Wishes You Knew, 10 Things Your Student With Autism Wishes You Knew and The Autism Trail Guide: Postcards from the Road Less Traveled, if she was available for an interview, and I was thrilled to have her say yes. I mean, really, this is a woman who has 1800 great ideas on how to help my kids – this rates right up there with a new handbag and a kid-free vacation for me!
Now, normally I’d say you should take notes, but with 1800 ideas jam packed into this book, Ellen can’t possibly rattle them all off here (no, really, she can’t). But, good news: Future Horizons has offered to give away a copy of her book! Look for details on how to win at the bottom of this post – or if you aren’t that patient (like me), hop on over to FutureHorizons.com and buy your own copy now.
Either way, you are in for a treat!
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Hartley: Welcome to HLW3B Ellen! I am so pleased to have you here today! Aside from being an award winning author and successful journalist, you are also the mother of sons with Autism and ADHD. Will you tell us a little about you and your family?
Ellen: And I am so pleased to have the opportunity to connect with HLW3B readers – thank you. My family lives in Oregon where my husband and I met while performing in an opera. My older son is a sports whiz who teaches and coaches children at a local community center, and my younger son is an aspiring filmmaker entering his senior year of high school. He’s interning this summer at the film school he’s attended in past years. Beyond my autism books, I’ve authored numerous family history articles for Ancestry magazine, am at work on a historical novel and have belonged to the same knitting circle for 22 years. I also enjoy baseball, chopping wood and griping about gardening.
Hartley: I have to start by saying that I was immediately drawn into your book 1001 Great Ideas because it is so simple to read and easy to apply. As the mother to three boys, two with challenges (but all *challenging*), it is easy for me to see how many of the ideas can stem from your own parenting experience, so aside from those experiences as a mother, where else did you get your inspiration?
Ellen: The book is set up to be the kind of reference a parent or teacher can go to for quick ideas on a specific issue, without having to read cover to cover. As my sons moved through school and through their developmental phases, I could see that that was the kind of help most frequently needed by both parents and teachers. Many of my sons’ teachers wanted to do everything within their power to help but didn’t have working knowledge or training in how the brain with autism learns – cognitively and socially. By accumulating the experiences of many teachers and parents in one book, everyone benefits from an aggregate body of knowledge.
Hartley: My favorite chapter is the one on Sensory (no shock there, right?). And I’d like to state for the record, I think “Twelve Signs of Sensory Overload” should be printed on posters and hung on classroom walls everywhere. Really. But for those who haven’t read the book yet, what other fresh sensory ideas does the book offer?
Ellen: Our overarching approach to sensory “therapy” is that we may be guided by an occupational therapist – and that is extremely important – but 99% of sensory activities are going to happen in the home, on an everyday, ongoing basis. So it’s important to realize that opportunities for sensory activities are all around us, all the time, and that sensory activities can and should be fun. Fun is the medium through which children learn best. Fun sensory activities don’t require expensive equipment or toy purchases (although the right ones can be good investments), but can be found in ordinary items such as boxes, balloons, bubbles, kitchen gadgets, straws, water, sand and sand alternatives, homemade clay, etc. The book offers hundreds of these kinds of ideas. Not only are they good for our kids but c’mon, admit it – it’s fun for us gr’ups to have an excuse to indulge our inner child. I loved playing with mud, shaving cream, rocks and other “stuff” with my kids.
Hartley: I also like the chapter on behavior – because that is the primary challenge at my house – so the advice is greatly appreciated! I was intrigued by the section “Don’t ask why”, honestly because I always assume if I could figure out why, then I could stop the behavior from happening. But, that is never the case. For my readers who haven’t got their hands on a copy of your book yet, will you give us a brief explanation of why you don’t ask why?
Ellen: Because your child may not be able to understand or articulate why. Asking a child to identify motivation for an act assumes a level of self-awareness and vocabulary that may be far beyond his or her current stage of development. Think about it – many adults are not capable of identifying reasons for their behavior, accepting responsibility for their behavior and taking steps to change behavior (hence the same old New Year’s resolutions, year after weary year). It’s far more constructive to first of all, ensure that the child understands what s/he did (don’t assume), involve him or her in a discussion (not lecture) about how to avoid the behavior in the future, and agree on consequences should it happen again.
Hartley: Your chapter about the relationship between parents and teachers is terrific as well – I believe that being able to see our children through the eyes of a teacher – and they through our eyes – can benefit both sides and help maintain a healthy team relationship. Give my parent readers your best tip on how to start fresh with their child’s new teacher this fall – and my teacher readers how to best get to know their new students with autism this coming year.
Ellen: The answer lies in your question – “start fresh.” Parent and teacher must give each other the courtesy of a clean slate. Parents, don’t overlay previous experiences, bad or good, on this new teacher. Teachers, you may have had previous experiences with children with autism, but this one is unique. Don’t overlay expectations for behavior problems , genius or social shortcomings on this child. A positive, team attitude and daily sharing of information between home and school is the foundation of setting the child up for success.
Hartley: For new parents, who are just starting out on the IEP/Special Education path, what is your best advice for laying the foundation during that first meeting as a means to establish a positive ongoing relationship with their child’s school?
Ellen: Approach your IEP/Special Ed team as just that – a partnership, not an adversarial face off. Keep in mind the definition of a team: all members working together toward a common goal. The goal in this team effort is the child’s success. It requires each member fulfilling their role, free sharing of information by all team members, leaving egos and personality differences at the door, respecting and working through the differences of opinion that will inevitably occur. In 1001 Great Ideas, we answer this question at length in a section called “Creating Positive Partnerships.” I also address it in Chapters 1 and 2 of Ten Things Your Student with Autism Wishes You Knew (“Learning is Circular” and “We are a Team).
Hartley: There are obviously too many Great Ideas in your book to go through them all – but which one stands out the most to you? Why?
Ellen: The hands-on, how-to tips and tactics in the book are action-oriented. But Veronica and I believe that attitude precedes and underlies action. My favorite Great Idea is the parable “A Word About ‘Normal’” at the end of Chapter 5 (“Thinking Social, Being Social”). In it, a middle school speech therapist advises a mom that, by looking around the school, she will see many kinds of “normal” – nerdy normal, artsy normal, techie normal, sporty normal, etc. The right social circle is the one in which a child can feel safe. Respecting a child’s individual social self as the right one for him liberates us from defining “normal” in any single way. [This is also available on Ellen's Facebook page]
Hartley: Thank you Ellen for taking the time to talk with me here today! I am very excited to share your book with my sons’ teachers (yes, all of them!) this coming fall – especially the Kindergarten teacher who asked me for a book – she gets the first copy! Truly, you are providing parents like me a fantastic resource that will help our children be more successful at home and in the classroom, and I personally thank you for that.
Ellen: It’s my honor to be part of the team – thank you!
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You can enter to win a copy of Ellen's book here, www.hartleysboys.com
Thanks,
Hartley
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Probiotic healthy Dark Chocolate Dietary help
it's dark chocolate more of a food line than what we all think
of when you hear chocolate, it's a probiotic we got one box from friend
but it's not like for casual munching. D was diagnosed late at
6.5, there is a study re: magnese levels with a girl on the spectrum,
that was what got us, we have tried meds and currently he's off the
heavy stuff but on for sleep/ moods. Differences I saw in
myself, no more fuzzy tongue, I have taken grapefruit seed extract for
year and it never helped this much. Predominant things listed in
webinars I have seen to date are anti inflammatory, moods, heart health
and weight loss. There are no claims of "curing". I deal with a a few
things and I felt different. As far as D, even on ozone or
particulate alert days it wasn't the oh my gosh did you take your fluticasone propionate? He didn't wheeze as much. We were only on first box for a
week, Derek has been stepped off of risperidone recently so things are
still not totally back to normal. Mentally, he did handle junk at
school better with historical rough territory of understanding other
people's emotions, during soccer he accidentally hit goalie w/ all,
goalie went off and all Derek did was use bad language. that was a huge
improvement in and of itself. Derek is slogging through puberty so it's
tough to say "this changed " good or bad, his official current dx is
autism add and psychosis NOS. our business is with Chocolate company is Xocai dark healthy
chocolate I am still learning, one spot that covers the products is http://www.thefivereasons.com/" rel="nofollow" target="_blank"> www.thefivereasons.com</a> D
also takes Boost for enteral therapy but never really put weight on
other than the brief time in the risperidone, D is tall , skinny and has a tough time putting weight on. Honestly
since D's diagnosis we have floundered with the state, and their
lack of help. If it continues to help with regulation of sleep, asthma,
and eventually when we can afford it weight gain, you would be the
first to know. I value your page more as a Mom than towards this but if
it helps D without the horrid side effects :).. I just don't want to
be what everyone on the spectrum is tired of and hurt by, "miracle"
stuff. No way. So yes, we will be your guinea pig family. On that not
my second oldest son deals with asperger's / Bi-polar. After researching
for D, I figured my best bet was majoring in Psychology after oodles
of research and eventual adulthood.. Financing it. yes, more than you
asked for as a family on the spectrum.. it's a personal integrity thing
and we could never afford complete GFCF for a family of 6, Be Blessed, healthy and safe, you do quite a bit:) Carrie
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assaulted @ school, principle claims steps were not followed...
Yesterday evening after dinner our son casually tells us that three other boys were throwing nails at him in shop. My son is in 9th grade at a school that is aprt of the Menta Group.
My son told the shop teacher, the teacher's reply was" I know, you are not the only one, I jsut haven't caught them yet"...????
I called dept of ed special services, I called the principle
the plan up till we found out was to move my son to a different shop class unitl my husband gave them the definition of assault, with a weapon that they , the school provided, the nails in shop class. My osn is not the only student that is being pelted with nails, I asked him how did they throw the nails, careful not to supply a description , he said like this and motioned as if to throw a dart. My husband also informed the principle that we are beyond the "steps" or actions prior to mediation and it is not being swept under the rug because too many bad thigns happen when we wait on the appropriate steps of action.
what gets me the most is the predominant student make up of the higher grades at this school are emotionally disabled students,paired with an autistic student... historically for our family this is usually a bad combination. Schools policy is there are no suspensions/ expulsions. school did not tell us, our son did by the time school was already closed.
Very Very tired of fighting... I know I have to after several years of crummy districts, it affects my health I just want my son safe and receiving a solid education, Prauing you all have a better day full of safety
Carrie
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UPDATE: Filming Dates Set for Rebecca Maher's "Pancakes and a Lobster Tank; Living with Autism, Loving Alex"...now all we need is the funds! :-)
Well, I have posted a few times about the dream of filming Pancakes and a Lobster Tank; Living with Autism, Loving Alex in front of a live theater audience for DVD. Well, we have booked the theater. It will be filmed on April 06 & 07, 2012 at the Kent State University Theatre on the Trumbull Campus (Warren, Ohio). All of the information to get tickets is available on http://www.autismplay.com">http://www.autismplay.com</A>. Now all we need to do is raise the money. This is a huge leap of faith but hopefully we can pull it together.
I want to thank each and every one of you for your kind comments. It is only through this community that we will make this happen! Why is this important? Well, as one of the parents of a child with Autism (Alex). It can sometimes be very difficult and daunting. THIS IS NOT A KNOCK ON ANY CITIZEN WITH AUTISM. It is that all a parent wants is for a their child to be happy, healthy, and reach for the best things in life. As parents, we only get to hear about miracle cures and recoveries. However, if you are not one of those parents and do not have the funds to make this happen (especially earlier in life), someone needs to assure you that everything will be okay.
I had a great experience yesterday. Alex is 13 years old and we went to the mall yesterday. For the first time ever, Alex asked to have his picture taken with Santa Claus. This is a first in 13 years! You know what? It will be okay because in his own time, Alex will get what he wants in life and will venture on new things as he is comfortable. Everyone needs to know this and that is the central theme of Rebecca Maher's "Pancakes and a Lobster Tank; Livining with Autism, Loving Alex". This needs to be a DVD so that the world can see it. Trust me, audiences agree because they have told us so.
Please visit http://www.AutismPlay.Com">www.AutismPlay.Com</A>. Take a look, there is a lot of video and testimonial. If you can be kind enough to contribute in one of the many ways, please do so with our sincerest thanks. If not, there are other ways that you can help if you are so kind and inclined:
1. Send the links for http://www.AutismPlay.Com">www.AutismPlay.Com</A> to your social network.
2. Follow us, and recommend us to your social network, on Twitter via @AutismPancakes.
3. Like our Fan Page, and recomment us to your social network via Facebook (Pancakes and a Lobster Tank; Living with Autism, Loving Alex)
This is not only a request, but I guess a plea. This can do a lot of good and I hope that each and everyone of you feel it is worthy of your assistance in making it happen. I know collectively we can do the best for ourselves and our children and relay a positive message to the world. I thank each and every person that reads this not only for myself but for Rebecca. Please keep in touch!
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