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June 21st 2010 My first blog here...
Posted on 21 Jun, 2010

This is the first time I write a blog in a long time. I used to do it when Tony my son was a infant. Over the years its been more difficult to keep up with.

I figure most of my life frustrations come from being a single mom of a child with special needs. There is not father in the picture. I have family but they are all over the place. My parents are older and not in the best of health, so they can't help me that much. Currently looking for respite help.

I do not have a DX on my son yet. He has been labeled PDD-NOS. The doctors seem to have mixed feelings about what may be the disability my son has. Could be brain damage during his developmental while I was pregnant. We have tests to schedule to try to rule this stuff out.

Tony is a amazing 4 yr old boy. The energy of 5 kids. He is social, one of the reason they don't think austism. He doesn't speak. He just starting using words back in October. I have got him into the school Margaret Murphy Center for Children in Auburn, Maine. Its a one on one program. All speech and OT is at the school. Tony is responding to Pecks program. Which soon he will be using at the home. That school is amazing and I would tell any parent of a special needs child to look into them for a school program. All positive things from them.

Well alittle bit about whats going on. They had taken my son off all his meds cause they wanted to see him with nothing. Well those WEEKS were so hard. We still are not done. It did end up with putting my son on risperdal. He seems to be responding well to it. Though now at school they are reporting more signs of Autism in my son. Its like we had to calm him down to see what he would actually be like if he wasn't lost in his own mind. They were seeing repeated movements and more zoning out. I've noticed the same at home. I like him being chill. He isn't being violent with me right now. So I have to say thats a plus, but yet I don't want him zoned out all the time. I guess only time will tell about that.



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Comments:
amynap Added: 16 Jul, 2010 8:25 am

You're a great mom. Hope things work out.  

Patsy Added: 06 Jul, 2010 3:35 pm

Tony sounds amazing and you sound like a great mother... :-)  

fiddlekid09 Added: 05 Jul, 2010 8:10 pm

Hi I glad to hear your son is doing well with the peck's system. They are a great tool to use at a early age. But as he get's older you might want to stop using them see they can become a crutch for him. My son used the peck's system when he was young to. But he has not started using his speech yet. Now that's not saying he won't but me and my wife look to the positive side of it. We also have started our son on conserda.  

LornadEnt Added: 01 Jul, 2010 3:16 am

Hello Mary, Welcome back to blogging. Hope the new meds work for your son and that you enjoy summer. Lorna   

jason_halloway Added: 30 Jun, 2010 5:09 pm

I have not heard anything bad about Clonadine...  

daiel_boyd Added: 28 Jun, 2010 10:24 am

Hope the Clonadine works out for your Tony...  

MaryRobinson1984 Added: 23 Jun, 2010 4:31 pm

Thank you all.. I try my best...

He had to be taken off the risperdal because his hands and wrist began swelling up. Like some type of allergic reaction. So now we are trying Clonadine. So Tony had a day off from the Risperdal. Tonight he starts taking the clonadine. He has totally been uncontrollable the past day. Something I'm used too. Once again I'll cross my fingers and hope this medication might work for him.

sschell - I will continue to find a diagnosis. Since he is only 4 yrs old its very difficult. I'm on waiting list for new psych doctors and the Ped's Center in Portland for a eval. I guess only time will tell.

  

melreindhart Added: 23 Jun, 2010 3:15 pm

great post..thank you and keep on bloging. I enjoy reading it  

BarbaraHutch Added: 22 Jun, 2010 10:19 am

Thank you for this post. You are a great and caring mother...  

noelbella Added: 22 Jun, 2010 8:55 am

Yeah, the aloofness is one of the side effects of risperdal. Has your son seen any signs of very dry skin or increased appetite as well?  

sschell73 Added: 22 Jun, 2010 7:53 am

No matter how long it takes to get a diagnosis, it is well worth getting the right diagnosis.  

Rebecca_mom_of_2 Added: 21 Jun, 2010 3:32 pm

God bless you and Tony! Everything will be fine. You are a terrific mother.  


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